The Daily Dot (Licensed)

How Facebook helped a woman with a rare disease find the freedom to be herself

It's not all doom and gloom on Facebook after all.


Matt Silverman


Posted on Feb 4, 2019   Updated on May 20, 2021, 8:02 pm CDT

Most of the tales that come out of Facebook these days are about the attention-sucking qualities that make it terrible for mental health and democracy.

But there are shining beacons of hope where the platform has empowered communities that could not exist IRL or elsewhere on the Internet.

Ashley Eakin is a filmmaker with an extremely rare bone disease that caused her great insecurity when posting online. That all changed when a powerful video about her story went viral across Facebook.

The Facebook groups that since formed around coping with “physical differences” have profoundly changed her life—and the lives of others in this new online community.

This week on 2 Girls 1 Podcast, Alli and Jen (actors who perform weird internet stuff on stage) talk with Eakin about her inspiring story of personal struggle and empowerment.

Listen to episode 69 of #2G1P right here:

2 Girls 1 Podcast is supported by listeners. A lot of time and resources go into research, booking, editing, and publishing this show. If you love internet culture as much as we love ’casting about it, consider a contribution of $1 or $2 per month to help offset our production costs. Become a patron of #2G1P and earn some cool perks while you’re at it:

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2 Girls 1 Podcast is hosted by Allison Goldberg and Jennifer Jamula, and is produced and edited by Matt Silverman in New York City. Production assistance is provided by The Podglomerate.

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*First Published: Feb 4, 2019, 5:45 am CST